Tag Archives: social model of disability

Psycho-emotional disablism in the lives of people experiencing mental distress (paper, 2011)

Reeve, D. (2011) ‘Psycho-emotional disablism in the lives of people experiencing mental distress’, paper presented at Disability or Distress symposium, Lancaster University, 15-16 November.

Abstract

This paper will explore what the concept of psycho-emotional disablism can bring to discussions about the relevance (or not) that the social model of disability has for those people who experience mental distress. Questions to be considered will include:

Does the recognition of disablism in both its structural and psycho-emotional forms make the traditional ‘social model of disability’ more relevant to people experiencing mental distress?

How does psycho-emotional disablism help understandings of the impact of prejudice and hate crime, both of which have higher rates of occurrence for people experiencing mental distress than other groups of disabled people?

How might psycho-emotional disablism intertwine with experiences of mental distress?

What relevance might this have for debates to date about psycho-emotional disablism and impairment/impairment effects more generally within disability studies?

This work-in-progress will show the potential benefits to be gained by using a more nuanced definition of disablism which explicitly includes forms of oppression that operate at both the public and private level. This discussion will also contribute to ongoing theoretical debates about the complex and blurred relationship(s) between disablism and impairment within disability studies which are exemplified by the experiences of people living with mental distress.

This seminar paper was developed into Reeve, D. (2015) ‘Psycho-emotional disablism in the lives of people experiencing mental distress’, in H. Spandler, J. Anderson and B. Sapey (eds) Madness, Distress and the Politics of Disablement, Bristol: Policy Press, pp. 99-112.

Psycho-emotional disablism and the ‘dys-appearing’ body: Implications for the disability/impairment divide (keynote, 2011)

Reeve, D. (2011) ‘Psycho-emotional disablism and the ‘dys-appearing’ body: Implications for the disability/impairment divide’, paper presented at Theorizing Normalcy and the Mundane (2nd international conference), Manchester Metropolitan University, 14-15 September (keynote).

Abstract

The social model of disability has been criticised for maintaining an artificial separation of the impaired body from socially constructed disability. Whilst politically this has been very useful in helping the disabled people’s movement recognise and challenge forms of social oppression experienced by people with impairments, this dichotomy fails to recognise the ‘carnal politics of everyday life’ (Paterson and Hughes, 1999). Drawing on phenomenological concepts, these authors showed that when people with impairments experience disabling barriers such as patronising behaviour, then the impaired body is brought into focus, ‘dys-appearing’ because of its perceived ‘abnormality’.

It is clear that the experience of psycho-emotional disablism (Thomas, 2007) which arises from disablist attitudes and behaviours at the interpersonal level, is closely related to Paterson and Hughes’ account of the ‘dys-appearing’ body. Therefore, one aim of this paper is to examine what the concept of social dys-appearance can bring to an analysis of different forms of psycho-emotional disablism. I will show that this provides a useful deconstruction of internalised oppression, identifying the difference between ‘false consciousness’ and ‘double consciousness’. I then extend the analysis to the experiences of ‘passing’ and creating oneself as the ‘disabled subject’ when applying for disability benefits.

These examples show that psycho-emotional disablism is embodied, which in turn has implications for discussions about the impairment/disability divide. Rather than ignoring impairment (social model) or suggesting that impairment is socially constructed, instead I will suggest that when considering psycho-emotional disablism, it is necessary to take account of impairment as part of the analysis of disablism. Bodies do matter; impaired bodies are not all considered equally in the cultural psyche. Therefore it could be predicted that prejudice (which leads to psycho-disablism) is mediated by perceived impairment – that psycho-emotional disablism can take different forms depending on what is known/visible to the other (non) disabled person.

Beyond the social model: The experience of psycho-emotional disablism (paper, 2010)

Reeve, D. (2010) ‘Beyond the social model: The experience of psycho-emotional disablism’, paper presented at RGS-IBG Annual International Conference, Royal Geographical Society, London, 1-3 September.

Abstract

This paper will discuss the experience of psycho-emotional disablism, which is a neglected dimension of disablism often relegated to the realm of ‘personal trouble’ rather than ‘political issue’ by typical social model analyses of disability.

One way of rectifying this omission is to use an extended social relational definition of disablism (Thomas, 2007). This framework explicitly recognises the social oppression experienced by people with impairments which operates at both the public and personal levels, affecting what people can do (structural disablism) as well as who they can be (psycho-emotional disablism).

Structural disablism includes the barriers typically associated with the social model such as inaccessible environments and discrimination in employment. Psycho-emotional disablism is a form of social oppression which undermines emotional well-being, self-worth and self-esteem such as dealing with prejudicial comments as well as internalized oppression.

Both structural and psycho-emotional disablism can exclude people with impairments – a wheelchair user can be excluded by the reactions of others e.g. the ‘Does he take sugar?’ response from strangers as well as by a flight of steps at the front of a building. Therefore, any sociological understanding of the lived experience of disablism has to take account of social oppression that operates at both the public and personal levels, structural disablism and psycho-emotional disablism.

Drawing on accounts of people with physical impairments I will discuss the complex nature of (in)direct psycho-emotional disablism and reveal how it is intertwined with structural disablism, impairment effects, time, place, space and other facets of someone’s identity.

‘Sick or disabled?’: A discussion of the interaction between chronic illness and psycho-emotional disablism (paper, 2009)

Reeve, D. (2009) ‘‘Sick or disabled?’: A discussion of the interaction between chronic illness and psycho-emotional disablism’, paper presented at Disability and Chronic Illness Workshop, University of the West of England, 30 January.

Abstract

Working from within a disability studies perspective, this paper uses the extended social relational definition of disablism (rather than disability) whereby:

‘Disablism is a form of social oppression involving the social imposition of restrictions of activity on people with impairments and the socially engendered undermining of their psycho-emotional well-being.’ (Thomas, 2007: 73)

Like the social model of disability traditionally used within disability studies, this definition clearly recognises disabling barriers which operate at the structural/material level, affecting what people can do. However, in addition to the more usual public barriers faced by people with impairments, this definition also explicitly recognises barriers which operate at the psycho-emotional (personal) level. Thus someone may be prevented from doing something because of a flight of stairs (structural disablism) or because of the attitudes/stares of others (psycho-emotional disablism).

Disability studies has been criticised for failing to take account of the lived experience of impairment and in particular, for failing to represent adequately the experiences of people living with chronic illness. Similarly, there have been criticisms of medical sociology for neglecting the effects of disablism when discussing the lived experience of people with chronic illness.

In this paper I will discuss some of the issues which arise when considering the potential role of psycho-emotional disablism in the lives of people with chronic illness. I will draw on the narratives of two women with MS and a man with RSD who took part in my doctoral research, to show the complexity of their lived experiences of chronic illness and psycho-emotional disablism.

I show how psycho-emotional disablism is revealed within their accounts of dealing with health professionals and other people, and how it is exposed by the problematic relationships they have with themselves (internalised oppression) as they move between different subject positions such as being disabled, sick or well. In addition psycho-emotional disablism can happen when one is forced to occupy a particular position by others, for example when applying for disability benefits.

However one cannot simply analyse these examples through the lens of disablism alone – it is also necessary to take account of impairment and impairment effects as well as other facets of identity. This is particularly true in the case of chronic illness such as MS with unpredictable ‘good’ and ‘bad’ days; what are the consequences of being ‘disabled’ one day, but ‘able’ the next? I also show how chronic illness can be exacerbated by the experience of psycho-emotional disablism as well as impacting on how people can resist this ‘inner’ dimension of oppression.

Importantly, although someone might not see themselves as disabled, as the examples I discuss show, this does not mean that psycho-emotional disablism will also be absent from the lives of people with chronic illness.

Therefore, when looking at concepts of chronic illness, it is also necessary to take account of the concept of psycho-emotional disablism and vice versa – they do not exist in isolation but interact with each other in a complex manner.